v21’s avatarv21’s Twitter Archive—№ 82,178

  1. I relate so much to this story - the endless round of tests, the deep dives into the medical literature and disinterest of doctors. And grief - the way that grief can paradoxically give you an exit from hope and so allow you to live again. theguardian.com/society/2023/jun/17/my-wife-was-annoyed-i-couldnt-do-chores-or-hold-the-baby-even-the-doctors-were-fed-up-with-me-my-life-with-chronic-pain?CMP=Share_iOSApp_Other
    1. …in reply to @v21
      I benefitted so much more from talking to people in the sick community than I did from talking to doctors.